When the Nose Doesn’t Know
This stuff does happen, y’all.
Turnip
For our second long story in Fiction, we had the options of either writing something new or revising one of our old draft stories we did earlier in the semester. After screwing around with a nonsense cliché story, I made the decision to revise my “Odor” story (first draft posted here). There are actually two reasons I wanted to do so:
1. For a long while, I’ve wanted to write about my experience with anosmia. Apart from a blog about it every now and again, I’ve never been able to really formally write about it. I’m not sure why—it’s kind of a difficult thing to write about in a formal setting, I guess. But trying to make a fictional story that involved a character who had anosmia really made it easy to express a lot of the things I wanted to express about anosmia without having it be about me. So that meant a lot.
2. When we workshopped my draft of “Odor” way back at the beginning of the semester, someone asked, “being born without a sense of smell is a thing?” I think that’s all I need as my second reason.
Anosmia Stuff!
Or, if you don’t have time (I got a little copy/paste happy, sorry. And yes, the actual article is quite a bit longer than this) (all emphases added by me):
- The negative consequences of olfactory dysfunction for the quality of life are not widely appreciated and the condition is therefore often ignored or trivialized.
- None of the treatments that have been investigated are in wide use and in most cases olfactory dysfunction is untreatable.
- Interactions with medical service providers can also be a source of frustration. One study showed that in Germany and Switzerland, 25% of patients felt that they had not been managed well and 6% felt that their condition had been trivialized.
- 2% of the subjects of this study are scared of getting exposed to dangers because of their olfactory dysfunction. The main concern is the inability to detect a gas leak or a fire. Several subjects report that they have actually failed to detect a gas leak. Similarly, the inability to detect fires has resulted in dangerous situations for some subjects.
- The most important odor to manage is one’s body odor. There are severe social consequences of failing to maintain the culturally expected body odor and many individuals who suffer from smell loss therefore are worried about their olfactory appearance.
- “Just recently one of our cats urinated on a piece of carpet, and it apparently reeked, and the smell was making my boyfriend nuts, and I couldn’t smell it at all. His reaction to me was complete disbelief, as if I was faking that I couldn’t smell something horrid.”
- For those with congenital olfactory impairment the challenge starts with convincing their parents and other adults that they cannot smell. Children with congenital smell loss are usually unaware of the dysfunction and only “discover” their condition as teenagers. One subject reports her experience when she was six years old and came home from school where cinnamon rolls were baked, wondering what this “smell” everybody else got so excited about was: “My mother got surprised, because she had absolutely no clue about this condition before that. We went to the hospital to check it out, but with little result. I was asked to smell several different things while being blindfolded, and I couldn’t smell anything. The result was however that I was a stubborn child who lied, so not much more was done.”
- Once affected individuals have convinced others of the existence of their condition, they often face a lack of sympathy. Olfactory impairment is not considered to be a serious disability and sometimes affected individuals are even told that they should be happy about their inability to smell unpleasant odors.
- “It’s a weird affliction. People don’t really get it. They think it’s not as big a deal as it is. After all, they figure anosmics aren’t disabled. We don’t need seeing-eye dogs or sign language to interact with our environment. And they are right — partly. We can function without drawing attention to our plight. We can do virtually everything we could before we lost our sense of smell, except enjoy the immensely important aspects of human life that most people take for granted”
- It is especially aggravating for the patients when members of the medical profession to which they turn for help trivialize their condition.
- Children who do not have a sense of smell often just mimic others’ reactions to smell without actually perceiving any smells.
- “Smelling seemed to me like religion, you just had to have enough faith to make it true.”
- “When I was little I used to pretend that I was able to because I thought I had to be able to “learn” how and I just wasn’t good enough at it yet.” [I thought this all the time]
- “I had always figured a sense of smell was something that developed as you got older.”
- In addition to places, times, and events, people also have characteristic smells. Many subjects in this study note that they cannot smell their babies or children. Others complain about not being able to smell their romantic partner and wonder if their olfactory impairment influences their romantic relationships.
- “I have become afraid: does my lack of sense of smell keep me from finding someone I’d like to spend the rest of my life with?”
As I think I’ve said before, anosmia (usually) isn’t that big of a deal for me, but for other and especially for people who become anosmic after having a sense of smell, it can be pretty messed up. If you’re interested in reading about peoples’ experiences with phantom smells (which sound like hell), check out the article.
Alright media, let’s get something straight:
Losing your sense of smell != losing your sense of taste. There’s a reason scientists/biologists have classified smell and taste as two different senses.
TASTE is what our taste buds give us. It refers to the five basic receptors in the mouth: sweet, salty, sour, bitter and umami. You could rip out our olfactory bulbs and we’d still “taste” food. Taste is physically different than smell. It is the result of our tongues receiving chemical information, and we can basically get five pieces of information (the five tastes) about food from taste.
FLAVOR is everything else: it is the combination of every other sensory input that we experience when consuming food. Visual appearance, atmosphere, lighting, sound, music, texture, mouth-feel—and smell. Smell is obviously the big one here. While it too is chemical, smells can give us vastly more information about food than taste can, especially when combined with other environmental factors (sound, texture, and whatnot) and the fact that smell is the sense most closely linked to memory.
So while anosmics can most certainly taste food (or much of it, at least; garlic does absolutely nothing for me and onions are crunchy and nothing else), they miss out on the huge flavor component that smell provides.
Now that I think about it, I might guess that that’s the reason why a lot of acquired anosmics tend to claim that they’ve lost their sense of taste entirely as well—because they’re so used to experiencing food WITH that added flavor component from smell, once they lose that they’re reduced to just “tasting” food, which is likely exceedingly bland in comparison. Whereas the congenital anosmic—like me—has never experienced the extra flavor from smell and thus doesn’t “know” of the subtle (and sometimes not-so-subtle) differences that smell can create. Therefore, for them, most foods are still very distinguishable from one another.
So there.
The next article I read that says “anosmics can’t tell the difference between a raw potato and an apple,” I’mma start stabbing fellows.
Today is the worst day of the year
So April Fool’s Day makes me want to stab people. But Google’s April Fool’s nonsense is actually pretty great.
This would actually be useful to losers like me whose noses don’t work.
Anosmia Awareness Day 2013
Happy Anosmia Awareness Day, everyone!
For the second year in a row, an awareness day for the nose blind has been organized.
I’ve posted this video before, but it’s an awesome mini documentary and is obviously relevant to today.
When the nose doesn’t know
Hey duders!
So this is probably something that is only of interest to me (but isn’t that the case with most of the crap on this blog?), but I’m posting it anyway.
Dr. Keller specializes in human odor detection at the Rockefeller University. His website has links to a bunch of really cool smell-related pages/projects/info.
There was something really important I was going to say as well today, but hell if I remember what it was now. I apologize. I’ve been embroiled in 17th century mathematical disputes for the past week. I can’t be concerned with the present.
TWSB: Nosy Mice
OH, WHAT NONSENSE IS THIS?!
Researchers at the University of Michigan have come up with a way to restore the sense of smell in anosmic mice!
Experimenting on mice that had lost their sense of smells due to a type of cilia dysfunction, researchers at the University of Michigan infected the mice with a modified strain of the common cold virus. The virus, containing the desired DNA sequences, rewrote the mice’s cells as the infection worked through their bodies. Once the mice had recovered, they were once again able to smell.
Dr. Jeffrey Martens explains that the virus was used to reintroduce neurons that transmit the sense of smell to regrow the cilia that the mice had lost. Unfortunately, though, the lack of cilia in the mice was due to a specific birth defect that affected a specific protein. A similar birth defect occurs in humans, but is usually fatal. So for now, there are no immediate applicable cures for human anosmics from these researchers’ findings, but hopefully the techniques and approach they’ve employed will lead them down the road that will one day allow those of us who lack olfaction to finally smell.
Documentary time!
Filmmaker Jacob LaMendola created this short video on anosmia that got featured on the New York Times website. Please watch it. Lots of interesting perspectives from congenital and non-congenitals alike.
SNIFFY
Holy crap!
“Sensonics, Inc. provides the medical, scientific and industrial communities with the best smell and taste tests for assessing chemosensory function.”
Shwing!
I’d love to try their Sniff Magnitude Test to see if anything’s actually registering and I just can’t tell, but there’s no way I can drop $6,000 on…well, anything right now, haha. I’d also like to see what the TR-06 Rion Electrogustometer is all about. I know my nose is shot…how screwy is my taste?
Anosmia Awareness Day
I belong to the group “Anosmics of the World, Unite!” on Facebook. We’re a group of 711 people who were either born without a sense of smell or lost it due to head injury/nasal viral infection/nasal polyps/etc. It was decided that today, February 23rd, would be our Facebook-driven Anosmia Awareness Day.
I know I’ve linked to the Wiki Anosmia page multiple times in this blog, so instead I’ll link you all to this fantastic little article. Please give it a read, especially those rare individuals out there who stumble upon this blog who haven’t already heard me blah-blah-blah about anosmia.
Enjoy! Stop and smell the roses for me. :)
TWSB: This Smell Tastes Funny
From the site: “The Smell & Taste Treatment and Research Foundation is dedicated to advancing research and knowledge on the effects of smell and taste on human emotion, mood, behavior and disease states.”
Just have a look around, especially at their research studies. Pretty cool stuff.
I wish I could smell, man. That’s another reason why I want to try out the 23andMe DNA thingy…they have an odor detection test of which I’d like to see my results. I’d just like to know at what level my sense is missing. Genetic issue? Brain structure issue? Olfactory bulb issues? “Olfactory bulb to brain” link issue? Something else?
Ah, the mysteries of life!
Maybe I’m meant to work at a dump or a skunk breeding farm or something.
Watermelon are seedy characters
Woah, hey, guess what?
Apparently Ben Cohen of Ben & Jerry’s fame has no sense of smell.
I was unaware of this.
According to the article (forgive me for not referencing it with a link; I copied the text into a Word document but didn’t bookmark the page and now can’t find it in the vastness of the Tubes), “when the company began back in 1978, Jerry would make a flavor and see if it tasted good enough for Ben to notice. Ben also relies heavily on his sense of touch to enjoy food. That is why Ben & Jerry’s is well known for its distinctly chunky ice cream. The chunks of fruit and candy mixed in with the creamy ice cream is designed to provide an enjoyable sensation in your mouth even if you have trouble tasting it.”
Haha, that’s funny…I’ve always liked Ben & Jerry’s best because their ice cream is full of thingies.
Yay anosmics!
DUDE IS THERE HOPE?
Read this abstract: http://www.ncbi.nlm.nih.gov/pubmed/12439184
Eh, probably not for us congenitals. I looked around and it sounds like the research only supports it improving the sense of smell in individuals who lost it due to viral infections. Still though…
Alpha lipoic acid capsules aren’t very expensive, don’t sound like they’re dangerous as long as you don’t chug the whole bottle, and are also supposed to help with memory-related stuff, which is good because I’m probably going to have Alzheimer’s by the time I’m 28.
But dudes, what would I do with a sense of smell, even a crappy one? I’d probably flip.
Must acquire alpha lipoic acid…
Also this: http://hisz.rsoe.hu/alertmap/index2.php?lang
It’s a pretty up-to-date map of all the disasters going on around the planet. Scroll down past the map to view current, short-term, and long-term disasters, tsunami and earthquake events, supervolcano and regular volcano monitoring, and near-earth objects in space. I actually found this before Japan’s earthquake, but look at that region now. Craziness. When this kind of stuff happens it always makes me wish I could physically go to the disaster site and work to help people there.
I need to be more careful
One of the problems with not having a sense of smell is not being able to tell when perishable things go bad. If it’s not moldy or showing some other visible sign of expiration, I can’t tell, especially with dairy products.
This was proven today when I poured a glass of milk that was very disgustingly chunky. Turns out its “use by” date was May 9th. I used it last night (before it decided to go chunky) and it tasted just fine to me. And the feta I put on my pasta? Yeah, that expired back in April.
Someone needs to go to the store tomorrow.
And yeah, I know, I know, check the expiry labels. I’m a slacker, what do you want?
Also, more hilarity from 5 Second Films, ‘cause I didn’t catch all the freaking hilarious ones the first time:
- http://5secondfilms.com/watch/robodog
- http://5secondfilms.com/watch/wranglin
- http://5secondfilms.com/watch/twilight_interview_with_the_new_moon_blood_vampires_assistant_saga_diaries
- http://5secondfilms.com/watch/the_fire_island_players_present_5_second_films_ed_wood_2007 (because of the last one, holy crap)
- http://5secondfilms.com/watch/booyakasha
Today’s song: Your Love is My Drug by Ke$ha (I don’t care how trashy she is, this song is pretty great)
Anosmia! Anosmia! Anosmia!
Ever since the stinky apartment incident, I’ve been thinking more about anosmia. Did you know that it’s considered a disability? And did you also know that there’s a positive correlation between olfactory deficits and schizophrenia (sources at bottom)?
I’ve often wondered what it’s like to smell. I recall the first time I realized that there was something different about my sense. It was back in first grade. Our teacher had all these numbered paper bags, each containing something with a distinctive odor (chocolate, an orange slice, cinnamon, etc.). Our activity was to go around with a little list of smells, smell the bags without opening them, and match the number of the bag with the smell. I remember everyone else having no problems with this; they’d stick their noses up to the bags, inhale, and say “oh, that’s chocolate” (or whatever the smell was), and write it down. I was trying to copy them—I stuck my nose up to the bags and tried to smell, but all the bags “smelled” the same to me. I thought I was doing it wrong somehow.
Haha, I don’t know why I remember that day so clearly, but I do.
Anyway. Just a random memory that I felt like divulging ‘cause it’s been on my mind lately. And also because I have nothing else to blog about tonight.
Here are the anosmia/schizophrenia sources:
Brewer, W. J., Wood, S. J., McGorry, P. D., Francey, S. M., Phillips, L. J., Yung, A. R., et al. (2003). Impairment of olfactory identification ability in individuals at ultra-high risk for psychosis who later develop schizophrenia. The American Journal of Psychiatry, 160, 1790-1794.
Corcoran, C., Whitaker, A., Coleman, E., Fried, J., Feldman, J., Goudsmit, N., et al. (2005). Olfactory deficits, cognition and negative symptoms in early onset psychosis. Schizophrenia Research, 80(2-3), 283-293
Good, K. P., Whitehorn, D., Rui, Q., Milliken, H., & Kopala, L. C. (2006). Olfactory identification deficits in first-episode psychosis may predict patients at risk for persistent negative and disorganized or cognitive symptoms. The American Journal of Psychiatry, 136, 932-933.
Kamath, V., & Betwell, J. S. (in press). Olfactory identification performance in individuals with psychometrically-defined schizotypy. Schizophrenia Research.
Moberg, P. J., Doty, R. L., Turetsky, B. I., Arnold, S. E., Mahr, R. N., Gur, R. C., et al. (1997). Olfactory identification deficits in schizophrenia: correlation with duration of illness. The American Journal of Psychiatry, 154(7), 1016-1018.
Follow-up to yesterday
So this working alone thing?
AWESOME.
I can listen to as much music as I want and sing along with it, I can dance, I can clean in whatever order I want, and I can do things MY way.
I love this. This makes this job so much better.
This Just In: The U of I Actually Helped Me Find Meaning in My Life (But Not Really)
Yay, my anosmia has a use!
Today we were driving around South Hill Terrace (for who knows what reason—god knows we weren’t cleaning) and Roy and Alice start to talk about this apartment that apparently hasn’t been cleaned in over two years because of a horrible stench inside of it that nobody can stand long enough to get the stench out.
We drive up to the apartment and we all get out to check out the stinky place. We all go in and within two minutes everybody else has a headache from the smell and has to leave. I’m standing in there going “this isn’t a problem at all!”
So Alice decides that if I don’t mind, I can work alone to clean the apartment until the smell is gotten rid of. This apartment, by the way, is pretty damn gross—the carpet is all covered in dirt and leaves, the oven is completely covered in who knows what (both inside and outside), there are cobwebs in the sink and cabinets and on the railing, the light coverings are all yellow, there are dead moths, bees, ants, spiders, and other miscellaneous bugs everywhere.
But I will be happy to work alone. It will get me out of the terrible drudgery of working with the guy who thinks he’s god’s gift to the world just because he can clean a toilet.
Madam, I’m a Madman!
Oh dear.
A conversation I had today with a soap vendor at the Ren Fair. Don’t know whether to laugh or cry (but I’m laughing as I’m typing this). Not verbatim, obviously, but pretty close, if I recall correctly:
Soap Vendor Guy: Smell this candle.
Me: No thanks, I can’t.
Guy: Can’t what?
Me: Smell.
Guy: Really?
Me: Yeah. I have anosmia.
Guy: What’s that?
Me: Um, it means I can’t smell.
Guy: You can’t smell anything?
Me: Nope.
Guy: Can you taste?
Me: Most things, yeah.
Guy: Well, how do you know?
Me: I’m sorry?
Guy: How do you know you can taste?
Me: Because I can…taste things…?
Guy: What does bread taste like?
Me: Bread, I guess…
Guy: Try smelling this one over here.
Me: (inhaling) Nope, nothing.
Guy: Seriously?
Me: Yeah.
Guy: Wow. So you really can’t smell?
Me: Nope.
Guy: Hmm.
Me: Yeah.
Guy: Here, try smelling THIS one.
I should have just faked it; I’ve been doing that a lot lately. A big deal? Nah. It’s funny sometimes, especially when I get conversations like this one going.
Oh, and here’s some enlightening material for y’all in case you’re interested:
http://www.anosmiafoundation.org/intro.shtml
http://www.anosmiafoundation.org/disability.shtml
http://en.wikipedia.org/wiki/Anosmia


